Congenital Anomaly Statistics (BINOCAR)

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The British Isles Network of Congenital Anomaly Registers (BINOCAR) is a group of regional and disease-specific registers collecting information about congenital anomalies occurring in England, Wales and Ireland.

This report includes data from six regional registers covering 36% of the births in England and Wales. It also includes data from two national disease-specific registers: the National Down Syndrome Cytogenetic Register (NDSCR) and the CRANE database which collects data on cleft lip and palate anomalies. The data from these registers are presented in separate chapters.

Between 1964 and 2009 a National Congenital Anomaly System (NCAS) was run by the Office for National Statistics (ONS) to monitor changes in the numbers of births with congenital anomalies reported by health authorities in England and Wales. NCAS was acknowledged to have a lower ascertainment rate than BINOCAR and published its last set of national surveillance data in 2008.

Congenital Anomaly Statistics 2012 England and Wales

Free UK delivery on Congenital Anomaly Statistics 2012 England and Wales

In Paperback Format
Congenital Anomaly Statistics 2012 England and Wales

£25.00
ISBN
9781910535356
Author
British Isles Network of Congenital Anomaly Registers (BINOCAR)
Published by
Dandy Booksellers Ltd
Publication Date
19 December 2014
Edition
2012
Format
Paperback
Extent
72 pages
Dimensions
A4 (210 x 297 mm)

This report collates data from six BINOCAR regional congenital anomaly registers, which together cover 36% of the births in England and Wales, to provide an estimate of the birth prevalence of congenital anomalies nationally.

Information from the National Down Syndrome Cytogenetic Register (NDSCR) for England and Wales and from the cleft lip and palate (CRANE) database for England, Wales and Northern Ireland are presented separately. 
  • Index of Tables
  • Index of Figures
  • Acknowledgements
  • Foreword
  • Executive Summary
  • Glossary
  • Abbreviations
  • Introduction
  • Aim of BINOCAR
  • Objectives of BINOCAR
  • Data collection, processing and validation
  • Data confidentiality
  • Comparison of BINOCAR with National Congenital Anomaly Statistics (NCAS)
  • Chapter 1: Prevalence of congenital anomalies
  • Chapter 2: Timing of diagnosis and outcome
  • Chapter 3: The NHS Fetal Anomaly Screening Programme in England
  • Chapter 4: Key public health indicators
  • Chapter 5: Geographical variations and comparison with EUROCAT registers
  • Chapter 6: Cluster analysis
  • Chapter 7: Spotlight on prenatal diagnosis
  • Chapter 8: Disease specific registers National Down Syndrome Cytogenetic Register
  • Chapter 9: Disease specific registers Cleft lip and palate (CRANE) database
  • Appendix A List of current register staff
  • Appendix B List of conditions for exclusion
  • Appendix C BINOCAR Coding Framework
  • Appendix D Geographical reporting of each register in 2012


Congenital Anomaly Statistics 2011 England and Wales

Free UK delivery on Congenital Anomaly Statistics 2011 England and Wales

In Paperback Format
Congenital Anomaly Statistics 2011 England and Wales

£25.00
ISBN
9781909620292
Author
British Isles Network of Congenital Anomaly Registers (BINOCAR)
Published by
Dandy Booksellers Ltd
Publication Date
September 2013
Edition
2011
Format
Paperback
Dimensions
A4 (210 x 297 mm)

This report collates data from six BINOCAR regional congenital anomaly registers, which together cover 36% of the births in England and Wales, to provide an estimate of the birth prevalence of congenital anomalies nationally..

Information from the National Down Syndrome Cytogenetic Register (NDSCR) for England and Wales and the cleft lip and palate (CRANE) database for England, Wales and Northern Ireland are presented separately.

Care must be taken in comparing data in this report and the 2010 report, which include data from six regional registers, with data from the 2009 report, which included data from five regional registers. Birth prevalence estimates rather than case numbers should be compared.

This report also provides a comparison between the birth prevalence of congenital anomalies in the BINOCAR registers and the birth prevalence in the European Surveillance of Congenital Anomalies (EUROCAT) registers (excluding the BINOCAR registers). 


Congenital Anomaly Statistics 2010 England and Wales

Free UK delivery on Congenital Anomaly Statistics 2010 England and Wales
Congenital Anomaly Statistics 2010 England and Wales

£25.00
ISBN
9781909620315
Published by
British Isles Network of Congenital Anomaly Registers (BINOCAR)
Publication Date
July 2012
Edition
2010
Format
Paperback
Extent
60 pages
Dimensions
A4 (210 x 297 mm)

This report collates data from six regional congenital anomaly registers, which together cover 35% of the births in England and Wales, to provide an estimate of the prevalence of congenital anomalies nationally.

Information from the National Down Syndrome Cytogenetic Register (NDSCR) for England and Wales and the cleft lip and palate (CRANE) database for England, Wales and Northern Ireland are presented separately.

Care must be taken in comparing data in this report, which includes data from six regional registers, with data from the 2009 report, which included data from five regional registers. Prevalence rather than case numbers must be compared.

This report also provides a comparison between the prevalence of congenital anomalies in the BINOCAR registers and the prevalence in the other European registers. 


Congenital Anomaly Statistics 2009 England and Wales

Free UK delivery on Congenital Anomaly Statistics 2009 England and Wales
Congenital Anomaly Statistics 2009 England and Wales

£25.00
ISBN
9781909620308
Published by
British Isles Network of Congenital Anomaly Registers (BINOCAR)
Publication Date
December 2011
Edition
2009
Format
Paperback
Extent
52 pages
Dimensions
A4 (210 x 297 mm)

This report collates data from five regional congenital anomaly registers, which together cover 28% of the population of England and Wales, to provide an estimate of the prevalence of congenital anomalies

Information from the National Down Syndrome Cytogenetic Register (NDSCR) for England and Wales and the cleft lip and palate (CRANE) database for England, Wales and Northern Ireland are presented separately.

Trends in congenital anomalies cannot be obtained by comparing earlier data from the Office for National Statistics National Congenital Anomaly System (ONS NCAS) with the 2009 data in this report; the prevalence reported by the British Isles Network of Congenital Anomaly Registers (BINOCAR) is consistently higher than that reported by NCAS due to active and multiple sources of ascertainment. 



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